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Winter 2000 Newsletter

Region Reports

Cherie Tessier and Katchen Helwig of Region 1 representing Alaska, Idaho, Montana, Oregon, Washington: Cherie Tessier reports that Oregon People First is putting out a newsletter by their members. Idaho needs help re-building. They are getting help from Washington state Self-Determination Group of People First of Washington. There were 350 People First members who attended the 23rd Annual Convention in Bellingham, Washington. Five Take A Second Look & Educate Others, Self-Determination members and two support persons earned their way to the TASH conference in Chicago, Illinois. Both groups listed above have been asked to present all over the U.S.A. Katchen Helwig reports that in Alaska recently, the People First group had an open house to get more members. A few people from the Alaska chapter took a trip to Kenai to do a workshop there to help them start a People First group. They went to Juneau also to help them start a group there. The People First chapters in Alaska have activities together and do not talk about People First at this activity but to have fun and make friends with each other. A few members are going to the conference in Tulsa. Alaska also had elections again.

Teresa Moore and Joseph Buchroeder of Region 2 representing Hawaii, California, Arizona, and Nevada: Abil, an Arizona Independent Living organization invited three National SABE Representatives from Western states to join Arizona to be on a panel for a Self-Determination workshop at the Arizona Division of Developmental Disabilities Conference "Diversity, Dignity, Dreams" in Phoenix, Arizona, October 6-7, 1999. Teresa Moore of Arizona (Region 2) joined Joseph Buchroeder from California (Region 2), Beverly Stevens from Wyoming (Region 3), and Mark Samis from South Dakota (Region 4). They talked about how to get “Self” back into Self-Determination. They not only had staff from agencies attending but Support Coordinators, (case workers) there also. One of the keynote speakers was Tom Nerney, Freedom: Self-Determination Across America, National Program Office on Self-Determination. He works for the Robert Wood Johnson Foundation. He was very interesting!

Beverly Stevens and Noel Rasband of Region 3 representing New Mexico, Utah, Colorado and Wyoming:Beverly Stevens reports the following: Colorado - Speaking for ourselves is very involved at present with the following activities: (1.) The Close the Doors committee is active in a number of ways including writing letters to the Department of Human Services to try and keep them on track with the plans to help the last remaining people move out of Grand Junction Regional Center. The committee had received a $500.00 grant for the Colorado D.D.P.C. and $1000 from U.S. West which they are putting together to pay for producing a video about getting people out of Grand Junction Regional Center and into the community with the supports they need. (2.) Lots of individuals from Speaking for Ourselves are going to participate in the plans to re-write the Developmental Disabilities Services Rule, the rules that govern the way people receive services in Colorado. (3.) Other goals include supporting the People First Chapters. We are very pleased with the chapter from the San Luis Valley which has only been around for a short while, but are becoming very independent and very good self-advocates! Wyoming - People First of WY had their State Conference in July, 1999 and had Nancy Ward as Keynote Speaker. The theme was “Open the Doors to Your Future”. Nancy did a workshop on Self-Determination. The People First of Wyoming board members are just trying to work together, getting along and figuring out what they want to work on at their state board meetings which includes working on plans for next year’s conference and updating their bylaws. There are eight Chapters here in WY, three of them are struggling, three of them are doing really great and two are doing well. Beverly Stevens was acting-out the Officers/Advisors (role-play) and Goal Planning with some of the Chapters, she found out from the People First Chapters members that they wanted to learn more about fund-raising, writing grants, and how to get along with each other. New Mexico - Exciting News! (PFA) People First of Albuquerque has been very busy advocating for representation and against discrimination (Nothing About Us Without Us!). They recently wrote letters to the New Mexico State Fair and the Supported Employment Advisory Council. If anyone is interested in seeing the letters they wrote, please notify Beverly Stevens and she will be glad to send them. Phylisha Paiz, President for (PFA) People First of Albuquerque will be attending the 1999 International Special Olympics Games (North Carolina) as a member of the New Mexico golf team. Phylisha Paiz did win a medal in the golf competition. Congratulations to Phylisha! 150 self-advocates attended the Arc/TASH Annual Convention that was held in Albuquerque, New Mexico April 22-23, four members from PFA, were speakers. A member of PFA Marilyn Martinez received the 1999 Arc of New Mexico Bob Thomas Award. She received a plaque and cash during The Arc’s Annual Awards Banquet in April. Marilyn was recognized for her achievements as a self-advocate in the community. Congratulations Marilyn! Don Romero, Treasurer for PFA has been appointed to the Long Term Services Division’s Supported Employment Council. In September they had a guest speaker from New Mexico State Fair Commissioners. They talked about what they will be doing to make the State Fair more accessible. On October 31, they had a guest speaker from the City Council, who explained how the Albuquerque City Council works. Utah - No Report

Joe Wrinkle and Mark Samis of Region 4 representing Kansas, Missouri, Nebraska, North Dakota and South Dakota: Joe Wrinkle reports that Region 4 had a meeting in Kearney, Nebraska on October 8 - 10, 1999. Attending the meeting was Kansas Representative Bill Caldwell, Nebraska Representative Janet Tibbs, Debbie Church, Dena Launderville, Advisor and State Advisor Joe Grovier. North Dakota was represented by Randy Scott, Allen Marx, Todd Lammers and state Advisor Raylene Hapip. Missouri was represented by Joe Wrinkle and State Advisor Tanya Whitehead. South Dakota was unable to attend due to no supports. Others attending the meeting were Nancy Ward of Oklahoma and Anita Carroll, People First of Missouri and Gil Flores, Advisor of People First of Springfield, Missouri. Our discussions were about concerns of self-determination, transportation, organization and looking for financial supports for our Representatives in Region 4. There was also a discussion on employment other than sheltered workshops. The Mission Statement for Region 4 is to Unite our Efforts in the Self-Advocacy Movement. We decided to create a three-fold display board to be on display at Regional, National, and International Conferences. Questions that were asked at the meeting included how People First members can join SABE, what is SABE doing to help People First at the national level?, How to become a non-for-profit agency. Also, can SABE act like a union and help people across the United States when they get jobs? JoeWrinkle will get SABE applications and send them to each State Advisor sothey can get more People First members involved with SABE in the Region 4 area. Our goals are to have Representatives to meet at SABE four times a year and that Region 4 will help work together with supporting their Region 4 Representative. As a Region 4 Representative, Joseph Wrinkle will gather SABE information at the SABE meetings and send it out to People First in the Region 4 area. Region 4 has good communication between states except South Dakota. We are working on several ways to get communication going with them in the near future.

Gloria Steinbring of Region 5 representing Minnesota, Iowa, Illinois, Michigan, Indiana, and Ohio reports: There were Common Vision Trainings in other states by A.C.T. and a Mentor Conference in October by People First of Minnesota including seven counties. There was a presentation at the Mentor Conference on SABE given by Gloria Steinbring. They asked her to do another presentation in April of 2000. Elouise Woods and Edward Sewell of Region 6 representing Alabama, Georgia, Mississippi, Tennessee, Kentucky, North Carolina, South Carolina, and Florida Elouise Woods reports that Alabama had their annual Conference on December 3, l999. Alabama’s conference theme was “Being Included In Our Communities Through Careers, Homes, and Relationships”. Elouise plans to make contact with representatives from Florida and Mississippi next quarter to find out what is going on in those states. Edward Sewell reports that he was invited to Georgia to consult with self-advocates there. While in Georgia he encouraged two groups of people consisting of about 20 people to start their own self-advocacy organizations. He also spoke to about 50 high school students about finding jobs - making the transition into the community. People First of Tennessee continues to work on closing down even more institutions.

David Young of Region 7 representing West Virginia, Maryland and Virginia. In November, People First of Virginia co-sponsored a regional conference at Wintergreen Resort near Charlottesville, VA. Many members of People First Chapters around the state were in attendance. A chalet was rented by the state group to house members who needed a place to stay and couldn't afford the rate. Presentations were made by different chapters and their members. People First of Northern Virginia is pursuing a holiday celebration at Fairfax Hospital that was intended for members to spread holiday cheer to critically ill children. The holiday party was to give these children gifts and food along with singing songs and making crafts. This turned into a "Grinch" like event when the activity coordinator nixed the idea unless the members were the "high functioning" ones and would not scare the kids due to their appearance. Members are outraged and are sending a letter of complaint to her and her supervisor at this huge area hospital. People First of Fauquier/Prince William chapter is getting ready for the 3rd annual First Night of Old Town Warrenton (VA) event. This chapter hosts a site with a live band. It is a great fundraiser for the chapter and will help send members to Rhode Island!

Mary Varney and Keira Williams of Region 8 representing Maine, New Hampshire, Vermont, Massachusetts, Rhode Island, Connecticut and New York. Keira Williams reports that Region 8 met in New Hampshire on October 6 - 7th and what they were able to accomplish was that 23 people attended the regional meeting. They met in New Hampshire. Each state gave reports and shared information. Mary Varney and Chester Finn gave a report about SABE. The things that were shared were: The SABE web site, the new Tool Kit. They talked about SABE’s Direct Action video. They also talked about the bylaws changing and about the ADD grant. The region wants Chester and Mary to ask the following of SABE: A. Can our region have a page on the SABE web site? B. We would like to have the opportunity to have in-put on the bylaws revision. C. We developed a Wish List and on it we would like to have money for the state representatives in our region to meet to help pay for costs for the regional meetings! D. We would also like to have money to attend different conferences! In the future, when SABE develops the Strategic Plan we would like to share our thoughts about this first so that the Goals come from the self-advocates at the grassroots and then SABE can hear what we want for Goals! Rhode Island would like to know the following: 1. Was there any money from the ADD grant that could go towards helping people with scholarships? 2. If any state has an idea of the numbers who will be attending the Annual Conference, Rhode Island would like you to give them an estimate. Liz Obermayer, who is on SABE’s Advisory Panel reports that Massachusetts had their third conference. Chester Finn was their keynote speaker. We are working on changing the department's name. We had our first Strategy meeting with other organizations. We are working on self-determination.

Ronnie Meeker of Region 9 representing Arkansas, Oklahoma, Texas, and Louisiana. reports that he is working on how to get more groups started around the state of Arkansas. He is also helping make people in institutions feel like they are a part of Arkansas People First. Ronnie believes that their voices (people living in institutions) should be heard. He believes “that we must all work together as one and work together to make a difference.”

March For Freedom ! SABE is encouraging all states to join in a walk onApril 26, 2000 to all state capitols to support the closing of institutions. Packets of information from SABE will be out in March about this.

 

Come to Rhode Island and RIde the Wave!!!! ( for more in formation on the national self advocacy conference please visit  there website at)  Advocates in Action

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